Welcome to the Capitol Area Carcinoid Cancer/Neuroendocrine Tumor Survivors’ group (CACS) of the DC, VA and MD region.  Founded in 2001, CACS is open to NET patients, families and caregivers.  We meet monthly for mutual support and to learn more about this rare disease and the latest treatments.  For dates of meetings and planned topics, please visit our Meetings page or contact us at CACSNETS@gmail.com.


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Immediate Upcoming Events include:

2018 CACS Meetings

  • Sept 8th – A Chocked Full to the Brim Session including:  a Sharing Session, Discussions about the National NETS Patient Conference – Sept 27-29 in Vegas;  The Bea Lehming Lecture Nov 10th Speaker Prep; Georgetown’s Reusch Center GI Cancer Symposium 11/30-12/1; Mt Sinai NETs Symposium 12/1 in NYC, and Webinar on Sept September 25, 2018
  • Oct 13th
  • Nov 10th Bea Leming Memorial Lecture
  • Dec 8th (Holiday Party)

Other News:

  • Webinar:  How to get the most out of Conversations With Your Doctor  Join Patient Advocate Josh Mailman and Health Communication Expert Neala Havener as they discuss common communication traps and tips for better conversations with your doctor.  Webcast Date: Tuesday, September 25, 2018  7 PM ET, 6 PM CT, 4 PM PT  Register

  • Save the date: Saturday 12/1/18 at Mt Sinai, NYC – NETs Symposium — watch this website and monthly meeting emails for details.

  • 2018 National NETS Patient Conference Announced
    This once every 2-year conference will be held Sept 27 – 29: Green Valley NV (Las Vegas).  For full details and to register, visit the NCAN web site

  • PRRT Was Approved January 26:  The targeted NETs therapy, Peptide Receptor Radionuclide Therapy (PRRT) was approved under the FDA’s orphan drug designation. For full details, see the Advanced Accelerator/Novartis site

  • More PRRT News:  “Long-lasting radionuclide therapy for advanced neuroendocrine tumors proves effective”    Click here to see the full article

Recent Special Speakers  

Visit our News & Resources for presentations and webinars from the Carcinoid Foundation, Dr. Amit Tirosh, Dr. Edward  Wolin, Dr. Naris Nilubol, Drs. Sue and Thomas O’Dorosio, and more.