Welcome to the Capital Area Carcinoid Cancer/Neuroendocrine Tumor Survivors’ group (CACS) of the DC, VA and MD region.  Founded in 2001, CACS is open to NET patients, families and caregivers.  We meet monthly for mutual support and to learn more about this rare disease and the latest treatments.  For dates of meetings and planned topics, please visit our Meetings page or contact us at CACSNETS@gmail.com.


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Immediate Upcoming Events include:

2019 CACS Meetings

  • Jan 12, 2019: Sharing Session (10 am)

    • Note: CACS does not recommend any program or physician, but always recommends seeking an opinion from a recognized NET expert before making any treatment decision.

  • February 9, 2019

  • March 9, 2019

Other News:

  • Aretha Franklin’s doctor discusses her PNETS. View it Here

  • November NETRF Walk generated more than $40K for research. See Past Events for Details

  • NET Vitals Form- Physician Conversation Prep Sheet – Available

  • PRRT Was Approved January 26, 2018:  The targeted NETs therapy, Peptide Receptor Radionuclide Therapy (PRRT) was approved under the FDA’s orphan drug designation. For full details, see the Advanced Accelerator/Novartis site

  • More PRRT News:  “Long-lasting radionuclide therapy for advanced neuroendocrine tumors proves effective”    Click here to see the full article

Recent Special Speakers  

Visit our News & Resources for presentations and webinars from the Carcinoid Foundation, Dr. Amit Tirosh, Dr. Edward  Wolin, Dr. Naris Nilubol, Drs. Sue and Thomas O’Dorosio, and more.