Welcome to the Capital Area Carcinoid Cancer/Neuroendocrine Tumor detaiSurvivors’ group (CACS) of the DC, VA and MD region.  Founded in 2001, CACS is open to NET patients, families and caregivers.  We meet monthly for mutual support and to learn more about this rare disease and the latest treatments.  For dates of meetings and planned topics, please visit our Meetings page or contact us at CACSNETS@gmail.com.


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Immediate Upcoming Events include:

2019 CACS Meetings

  • Sept 14th: Topics: 

  • A patient sharing session
  • Information about a new, FREE, grief counseling program, called “Good Grief,”offered by Inova. The program will meet on Tuesdays and will run for 8 weeks (Sept 17-Nov 5th).  Registration is required by Sept 17th.  For Details, click HERE
  • Sept Announcements: for details, see future events tab)
    • Insurance Coverage Webinar, Sept 14th.  Details and sign-up, click HERE
    • Drug Pricing Webinar.  For details and sign-up, click HERE
    • Request to support NETs Awareness Day Proclamation For details, click HERE
    • Aretha Franklin NET research fund at NETRF.  For information, click HERE
  • October 12 – Patient Sharing, Grieving Support Programs (Inova Life With Cancer Support Person to attend)

  • November 9th (International NET Awareness Day support and other topics)

  • December 7th – Holiday Gathering

  • CACS does not recommend any program or physician, but always recommends seeking an opinion from a recognized NET expert before making any treatment decision.

Other Events and News:

(with Links to Details on our web site)

  • Saturday Sept 14th Facebook Live event: Insurance: Preparing for Open Enrollment”  details – click HERE
  • Monday Sept 16th – Drug Pricing Seminar/Webinar 12-1pm  Details and signup
  • Norby Gasho – Memorial Service Sept 20th – For details, please see your CACNETS email of Sept. 6th
  • Encourage Gov. Hogan (Maryland) to Issue a NET Awareness Day Proclamation for 11/10/19  For information, click HERE
  • Good Grief Grieving Support Program  Click HERE for Details
  • Formation of the Aretha Franklin Fund for Neuroendocrine Cancer Research (NETRF). For details, click HERE
  • NIH Rare Tumor Research Study – Now Operational.  For details and to apply, click here

  • NET Vitals Form- Physician Conversation Prep Sheet – Available

  • PRRT Was Approved January 26, 2018:  The targeted NETs therapy, Peptide Receptor Radionuclide Therapy (PRRT) was approved under the FDA’s orphan drug designation. For full details, see the Advanced Accelerator/Novartis site

  • More PRRT News:  “Long-lasting radionuclide therapy for advanced neuroendocrine tumors proves effective”    Click here to see the full article

Recent Special Speakers  

Visit our News & Resources for presentations and webinars from the Carcinoid Foundation, Dr. Amit Tirosh, Dr. Edward  Wolin, Dr. Naris Nilubol, Drs. Sue and Thomas O’Dorosio, and more.