Welcome to the Capitol Area Carcinoid Cancer/Neuroendocrine Tumor Survivors’ group (CACS) of the DC, VA and MD region.  Founded in 2001, CACS is open to NET patients, families and caregivers.  We meet monthly for mutual support and to learn more about this rare disease and the latest treatments.  For dates of meetings and planned topics, please visit our Meetings page or contact us at CACSNETS@gmail.com.


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Immediate Upcoming Events include:

2018 CACS Meetings

  • Nov 10th:  Special Events at Special Location

    • Walk to Benefit Neuroendocrine Tumor Research Foundation
    • CACS Meeting
    • Full Details on our Future Events Page
  • Dec 1st:  Mt Sinai NETs Symposium 12/1 in NYC, Details and Registration Link on our Future Events Page
  • Dec 8th: CACS Holiday Party

Other News:

  • Registration Now Open: NETs Symposium Saturday 12/1/18 at Mt Sinai, NYC– details are on our future events page

  • NET Vitals Form- Physician Conversation Prep Sheet – Available

  • PRRT Was Approved January 26:  The targeted NETs therapy, Peptide Receptor Radionuclide Therapy (PRRT) was approved under the FDA’s orphan drug designation. For full details, see the Advanced Accelerator/Novartis site

  • More PRRT News:  “Long-lasting radionuclide therapy for advanced neuroendocrine tumors proves effective”    Click here to see the full article

Recent Special Speakers  

Visit our News & Resources for presentations and webinars from the Carcinoid Foundation, Dr. Amit Tirosh, Dr. Edward  Wolin, Dr. Naris Nilubol, Drs. Sue and Thomas O’Dorosio, and more.