Category Archives: News & Resources

Participate in an online survey to measure stress caused by Cancer

Emily Johnson, whose father passed away in 2015 after a 7-year battle with stage 4 salivary duct carcinoma learned first-hand that the illness and treatment process was extremely stressful both emotionally and financially for the patient and the family. This … Continue reading

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Georgetown Lombardi Ruesch Center for GI Cancers 2019 Symposium Dec 6-7

CACNETS members have again been invited to attend this “Innovations in GI Cancer” symposium at NO cost. And, as before, we anticipate providing some NETs educational information for attendees. – The Friday agenda is primarily for clinicians; however, you will see that … Continue reading

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Expert Videos

Carcinoid.Org held a series of Facebook live-streamed conversations with NET experts during 2019 covering a range of topics, that included Living with NETs, Imaging, Lung NETs and more.  To find and view these videos, click HERE

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Formation of the Aretha Franklin Fund for Neuroendocrine Cancer Research (NETRF)

The Detroit Women’s Informal Network honored the life of Aretha Franklin making the initial gift donation of $1,500 to the Neuroendocrine Tumor Research Foundation (NETRF) to establish the Aretha Franklin Fund for Neuroendocrine Cancer Research.  To read more about the … Continue reading

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LACNETS Recorded Facebook Live event: Insurance: Preparing for Open Enrollment

Hosted on 9/14/19 by LACNET (California NETS Group).  The speaker was Dayana R. Pelayo, Esq., Staff Attorney, Cancer Legal Resource Center  To view the recorded webinar, Click HERE

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Good Grief Grieving Support Program

Inova will be offering a FREE grief counseling program, called “Good Grief.”  The 8 week program will meet on Tuesdays (Sept 17 – Nov 5).  In this program you will meet with others who also lost a loved one to cancer. Share … Continue reading

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Drug Pricing Seminar/Webinar Sept 16th 12-1pm (Eastern)

Hosted by the rare disease lobbying organization, Rare Disease Legislative Advocates (RDLA), the event is intended to address questions and requests from the rare disease community to better understand the impact of potential drug pricing legislation on rare diseases.  Policy … Continue reading

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